Advanced Breast Cancer Panel and Metastatic Breast Cancer Awareness Day

I sat in on an extremely personal and informational panel from the team behind Count Us, Know Us, Join Us during the 10th annual BlogHer conference in Silicon Valley. This special panel was to discuss the needs of women with advanced breast cancer and the mission of Count Us to recognize those living with the disease, their caregivers, supporters, friends and family members.

Count Us, Know Us, Join Us will celebrate those with Advanced Breast Cancer on October 13, 2014. Join the Thunderclap campaign for MBC Awareness Day!

Panel members included Director of Patient Advocacy at Novartis Elyse Spatz Caplan, Dr. Jackie Rogerio, patient advocate Ivis Sampayo, and advanced breast cancer survivor Kim Parker.

Elyse Spatz Caplan explained that women with advanced breast cancer often feel isolated and alone. In fact, in a recent global survey of 1,273 women living with advanced breast cancer, nearly two-thirds (63%) said they often feel like no one understands what they are going through. The needs of women living with advanced breast cancer have very different emotional and physical needs versus women diagnosed with early stage breast cancer. Spatz Caplan felt strongly that the cancer community needs to do better and more to help those living with advanced breast cancer.

“We need to do better, do more.” – Elyse Spatz Caplan

Dr. Jackie Rogerio explained that advanced breast cancer is often referred to as “metastatic breast cancer,” or Stage IV breast cancer – where the disease has spread outside of the breast and to other organs such as the liver, bone or brain. Statistics reveal that patients often feel there is no hope when diagnosed with advanced breast cancer but Dr. Rogerio explained that with a muti-disciplinary approach to treatment, a good quality life is possible for patients.

“Our goal for patients living with advanced breast cancer is to help them live a quality life.” – Dr. Jackie Rogerio

Kim Parker, a former police officer and Navy veteran living with advanced breast cancer, shared her story of diagnosis and how she copes living with the disease. Kim suggests to set goals, find a doctor that fits your needs and circle yourself with a positive support system. In that global survey, 41 percent of survey participants indicated that support from family and friends waned over time. Resources to help create a support system can be found at advancedbreastcancercommunity.org.

“Wail and wallow” and then “find a way to live.” – Kim Parker

Breast cancer survivor and patient advocate Ivis Sampayo spoke passionately about the needs of women with advanced breast cancer. She encourages women to seek out resources and to be an active participant in their own care. Furthermore, she petitioned the group to consider the needs of the global community because advanced breast cancer affects all of us.

Metastatic disease is a harsh reality and we’re not addressing it.” – Ivis Sampayo

In an effort to bring much needed awareness to advanced breast cancer and more attention to its community, the Count Us, Know Us, Join Us program will celebrate Metastatic Breast Cancer Awareness day on October 13, 2014. Join the Thunderclap campaign here and show the advanced breast cancer community that they count.

Count Us, Know Us, Join Us will celebrate those with Advanced Breast Cancer on October 13, 2014. Join the Thunderclap campaign for MBC Awareness Day!

Count Us, Know Us, Join Us has created information and resources specific for women living with advanced breast cancer and those who care for them. These resources can be found at advancedbreastcancercommunity.org.

Almost Like Beatlemania

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Last month, I went to San Jose for the 10th annual BlogHer blogging conference. This was the fourth BlogHer that I’ve attended and most likely, my last. There were a ton of highlights as well as a few low but I’m focusing on the fun today. Several of us met in San Francisco before traveling to San Jose. We stayed at the Ritz in Union Square and it was lovely but we wondered why a good three-feet of our hallway {Read More}

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Female Friendships

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What is Advanced Breast Cancer?

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Headband Bookmark | Adventures in Pinterest

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My six year old loves to read and to be read to. But with summer, her regular bedtime routine has been completely obliterated since I promised she could play outside until dusk. In So Cal, that’s right around 8:00pm and after a shower and brushing teeth, bedtime looks a lot like lights out. We’ve been trying to make our way through a summer reading list, sneaking in a few chapters between running errands and afternoons at the pool. I pinned {Read More}

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Cuisinart Ice Cream Maker Giveaway!

Ice-Cream-Giveaway

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The Interesting Thing About Female Friendships: Worthwhile

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Anna Hartman of In The Next 30 Days shares what a broken friendship can ultimately lead to. If you’ve ever had a girlfriend who spilled your secrets, this one is for you. At my first girl-boy party in sixth grade, a party that I’d looked forward to for weeks, I was pantsed by Elizabeth*, my best friend, as I stood in a group of my friends who laughed, hands pressed over their mouths with fingers pointing and faces flushing. In {Read More}

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