Army of Women | Hot Flash Study

Army of Women need women ages 40 to 62 who have not had breast cancer and have bothersome hot flashes or night sweats to take part in a research study. The study is testing two medicines that may help women who have menopause-related hot flashes. Researchers in Boston, Seattle, and Philadelphia are running this study. It is one of three clinical trials currently being conducted as part of the Menopausal Strategies – Finding Lasting Answers for Symptoms and Health (MsFLASH) study, sponsored by the National Institutes of Health.

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Know someone who lives in Boston, Seattle, or Philadelphia who might be interested? PASS IT ON! Forwarding our information to friends and family members is just as important as joining the study.

Who can participate?
You can join if you match ALL of these MAIN categories:
• You are a woman between ages 40 and 62

• You are peri- or postmenopausal

• You have bothersome hot flashes/night sweats

• You have NOT been diagnosed with endometrial, ovarian, or breast cancer

• You are NOT currently pregnant, breastfeeding, or planning to become pregnant

• You read, write, and speak English

• You live near or are willing to travel (at your own expense) to Boston, Seattle, or Philadelphia for 3 or more study visits.

After you RSVP, the research team will ask you additional questions to be sure that this study is a good fit for you.

Sign up to join the Army of Women today!

I was not compensated by Army of Women to share this study with the readers of Wendy Will Blog. Additionally, I think it’s important to share that I currently – and have since starting chemotherapy in 2008 – take a low dose of venlafaxine (brand name Effexor XR) to help manage hot flashes. I’ve tried several times to wean from venlafaxine and have been unsuccessful. This drug is very difficult to stop taking. I strongly urge anyone considering this study to consult with your doctor first.

New Breast Cancer Study | Army of Women

The Dr. Susan Love Research Foundation and the Army of Women are looking for women diagnosed with any stage of breast cancer for a new breast cancer study. Please forward this on to any women in your life who may have been diagnosed with breast cancer. The study involves an online survey – and that’s it! xo, Wendy

Army-of-Women-Call-to-Action

We need women in the United States who have been diagnosed with breast cancer of any stage (including LCIS and DCIS) to take part in an on-line survey developed by researchers who are trying to identify individual characteristics that may put some breast cancer survivors at higher risk of developing uterine cancer.
Studies have shown that the drug tamoxifen, which is used to treat women with hormone-sensitive breast cancer, can increase a woman’s risk of developing uterine cancer. These researchers want to identify certain personal characteristics that might influence whether or not a woman taking tamoxifen goes on to develop uterine cancer. It is NOT necessary to have taken tamoxifen to complete this survey.

Please read on to learn more about what’s involved and who can participate. And please don’t forget to tell any of your friends or family who are breast cancer survivors about this on-line study!

What’s the study about?
The research team wants to develop a tool that can determine whether a woman with breast cancer is at higher risk of going on to develop uterine cancer. Women will be separated into two groups: 1. those who developed uterine cancer after being diagnosed with breast cancer and 2. those who did not develop uterine cancer after being diagnosed with breast cancer. Comparing the two groups will allow the research team to investigate the specific individual characteristics that are associated with developing uterine cancer after being diagnosed with breast cancer. If you were diagnosed with uterine cancer before you were diagnosed with breast cancer, you can still participate in the survey.

What’s involved?
If you sign up for the Breast Cancer, Uterine Cancer, and YOU Study, you will be sent a link to an on-line survey. The survey is confidential. This means that you will be asked to provide basic demographic information (such as age and ethnicity), but that you will NOT be asked for any identifying information (such as your name or e-mail address). The survey will ask questions about your smoking and exercise history, breast cancer diagnosis and treatment history, reproductive health and menstrual history, and personal and family medical history, including whether or not you have been diagnosed with uterine cancer. The survey will take approximately 20 minutes to complete.

Who is conducting the study?
Michael Milam, MD, MPH, at the University of Louisville Brown Cancer Center, in Kentucky

Where?
Anywhere in the United States – this is an on-line study

Who can participate?
You can join the Breast Cancer, Uterine Cancer, and YOU Study if you match ALL of these MAIN categories:

• You are a woman over the age of 18
• You have been diagnosed with breast cancer of any stage (including LCIS and DCIS) at some point in your life
• You have access to the Internet and are willing to complete an on-line survey
• You live in the United States

If you RSVP for the study and are found to be a match, you will receive a link to the on-line survey.

Click here to join the Army of Women and register to be an volunteer for this study or any other breast cancer study

Other Current Projects Needing Volunteers

I was not compensated to post about this study

Army of Women | Become One of a Million

I’m thrilled to announce that Wendy Will Blog is now a member of the Army of Women’s Supporting Blogger Network! The Army of Women is an online initiative supported by the Dr. Susan Love Research Foundation. I’m proud to say that I’ve been part of the Army of Women for a little over two years now and that I’ve participated in two important breast cancer studies. BUT, the Army of Women has a goal of recruiting ONE MILLION women and they need you!

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In the coming days I will add a dedicated AOW page which will feature new study launches and updates, the study of the month, news and events, and videos. You should head over to the Army of Women Facebook page and give them a “like” as well as follow them on Twitter. More importantly, I encourage you to enroll in the Army of Women. We need you. Breast cancer research needs you.

Here’s some additional information about the Army of Women.

How did the Love/Avon Army of Women get started?
Like many women, Dr. Susan Love was becoming increasingly frustrated by our not having made more progress in figuring out what causes breast cancer and how to prevent it. Scientists told her that they did not know how to find the women who would be interested in taking part in the studies that were needed to end this disease. Dr. Love realized the pr

Why should I sign up for the AOW?
You should sign up for your sister, mother, daughter, granddaughter, best friend, and the woman you met last week. Breast cancer has been around for decades, but it does not have to be our future. We can be the generation that stops breast cancer once and for all by figuring out what causes this disease and how to prevent it! This is YOUR chance to be part of the research that will end breast cancer.

How does the Army of Women work?
Women who are interested register on the Dr. Susan Love Research Foundation’s Army of Women Program website, providing very basic information such as name, age, city, and state of residence. You will receive email updates from the Army of Women announcing new research studies looking for volunteers just like you. The email will detail the research project and who and what the researchers need. If you fit the criteria and you’d like to participate, all you need to do is click “Yes Sign Me Up”, this lets us know you’ve accepted our “Call to Action”. From there, you will be asked to log-in to your account and then directed to the next steps. If you accept the Call to Action by clicking “Yes, Sign Me Up”, you will be asked a couple of screening questions to make sure you qualify for the study. Once we confirm your qualification for the specific study, your information will be given to the researcher conducting the study and you will be contacted by the researcher for a secondary screening to make sure you meet the study criteria and answer any questions you might have about study participation. You will never be pressured to take part in any study. The decision to take part is yours — and yours alone. If you meet the study criteria as determined by the researcher and are interested in taking part, the study researcher will let you know what you need to do next.

What might a study require?
There are many different types of studies. Some might require you to complete a questionnaire, while others might need a sample of blood, urine, saliva, breast fluid, or breast tissue. Some studies might be clinical trials testing a new detection marker or drug. You decide which studies you want to take part in.

Click here for additional FAQ’s about the Army of Women.

And watch “Million in the Mirror” below – the first ever PSA about the Army of Women.

If you have any questions about joining the Army of Women, please comment below or shoot me a private email and I’ll he happy to answer your question or put you in contact with the people who can.

363,810 women (and men) and counting. Join us!

A Very Reasonable Plea

The following is by far the best response I’ve read regarding the explosive ending between The Komen Foundation for the Cure and Planned Parenthood. It comes from the blog of Dr. Susan Love. I think she has a very reasonable plea.

Dr. Susan Love Research Foundation

Tuesday, January 31, 2012

Do Only Some Lives Matter?

The Komen Foundation for the Cure has announced it will no longer give grants to provide breast exams and mammograms through Planned Parenthood affiliates. Komen states that this has nothing to do with the “Right to Life” but rather the fact that Planned Parenthood is being investigated. According to the New York Times the investigation is by a conservative Republican who was urged to act by anti-abortion groups. This is sad. Investigation does not mean guilt. What happened to innocent until proven guilty?

Pro-choice should be just that. The woman gets to choose—to choose where the money she sweated through runs and walks to raise should be spent! Pro-life should mean not just the lives of babies, but also the lives of women! This is not an either or situation.

Patrick Hurd is the CEO of Planned Parenthood of Southeastern Virginia, a recipient of a 2010 grant from Komen. He is also the husband of a breast cancer survivor who is the veteran of several Komen fundraising races. As he told the Associated Press: “Cancer doesn’t care if you’re pro-choice, anti-choice, progressive, conservative, victims of cancer could care less about people’s politics.”

Rather than putting politics into the breast cancer movement, lets rise above the political divisions and work together. Let’s redirect all the money that will be spent on investigating Planned Parenthood into funding studies looking to find the cause and prevent the disease once and for all. Let’s redirect our anger to making mammograms unnecessary because we know how to prevent the disease.

Do you think the needs of cancer patients are being overlooked and disregarded for the political agendas of those involved?  Mind you, breast cancer remains incurable.  

Bucket List 53/100

Bucket List: 53/100
Participate in a breast cancer clinical study.

The irony, right? This particular bucket list item randomly chosen (yes, I used Random Number Generator to choose) during “Breast Cancer Awareness” month and the third anniversary of my own diagnosis.

At least a year ago – or more – I joined the Army of Women, a program of the Dr. Susan Love Research Foundation. The site is used essentially to partner women with the disease and scientists seeking to find a cure for breast cancer. It’s all on a volunteer basis and upon registering you are notified about clinical studies happening that may be appropriate to your particular diagnosis.

So, of course I signed up for the Young Women’s Breast Cancer Research Program at the Siteman Cancer Center/Washington University School of Medicine. The scientists there are studying the genetic makeup of women with early onset breast cancer (me). The woman’s genes are compared with her parents’ as well as women without the disease and her respective parents too.

Here’s geneticist Paul Goodfellow, PhD discussing the research program:

My involvement was fairly simple. They sent me a kit to have my blood drawn and a Fed-Ex envelope to ship it off to their lab. My dad also agreed to have his blood drawn and studied but I don’t think he’s had it done yet (this is your official hint, Dad).

Women my age represent a very small fraction of those diagnosed overall. There is not enough long term data or studies which poses several problems in areas of prevention and screening – doctors simply don’t know how to manage young women with breast cancer. Additionally, the study of early onset breast cancer is NOT a major for science because of the small number of affected women and thus research money goes to programs geared for women diagnosed over 40 years old.

I’m pretty proud to be a part of the Young Women’s Breast Cancer Research Program because who knows what will come of it. Imagine if my genes held the answers to curing early onset breast cancer!

53/100 = done.